Children’s Hospice Week 13-20 June 2014

[© Tŷ Hafan. Original version here.]

Tŷ Hafan is taking part in the UK’s only awareness raising and fundraising week for children with life-limiting conditions and the services that support them. This year they’ll be celebrating everyone who helps provide round the clock care for seriously ill children.

Children with life-limiting or life-threatening conditions often have complex needs that require care 24 hours a day, seven days a week. This can put enormous pressure on families, carers and siblings – children’s hospices and palliative care services are there to provide a vital lifeline.

Tŷ Hafan offers a wide range of services, care and support for families in Wales. Its unique service reaches right in to the heart of the family home in communities across Wales.

Kelly, whose family is supported by Tŷ Hafan, explains,“Willow’s condition means she requires 24 hour care. She is connected to a ventilator and her condition can worsen during the night. It’s quite overwhelming knowing we are keeping our daughter alive every day. It’s a big responsibility and can be quite hard at times.

“Tŷ Hafan has helped taken away our stresses. Having that break at the hospice allows us cope so we can carry on with the next few months. We don’t realise how stressed we’ve been until we’ve had that rest.”

Hero Friday

This year Children’s Hospice Week culminates with Hero Friday. Dress up as your hero and help raise money to provide 24/7 care for seriously ill children. It could be your favourite pop star, actor, sports personality or superhero. Or maybe your hero is a family member or friend that’s made a world of difference to you.

Tŷ Hafan is a charity that relies on your support to deliver vital services to children and families. Please be a hero this Children’s Hospice Week and show that ‘We Care 24/7’.